I would do anything to hear those words spoken to me by my daughter. My journey with Grace began when she was 13 months old and still not pulling herself up to standing. I thought there might be something wrong, and our pediatrition agreed. Currently Grace has had 3 MRI's- and if you have a little one who has gone through this- it's very scary. She had to be put under anethesia all three times. She did fine, I did not. The MRI concluded that she has old scar tissue in the middle of her brain, thus hindering her speech and gross motor development.
We started with the Early Intervention team in our county and were blessed by the most wonderful therapists that offered in home therapies until the age of three.
Leukodystrophy, Brain trauma, Autism, Severe Needs, Special Needs, Non-Verbal...these are words spoken daily in my house. Today, we still do not a have a formal diagnosis.
Some days are better than others, for all of us. Some days my capacity and patience is amazing, others, I am overwhelmed and just want to run away.
I want to be able to use this blog to vent, meet other parents in the same circumstances, and maybe teach others what true life is like with a real family and our sweet, sweet Grace.
